The January 2024 edition of On the Beam is here, celebrating the grandparents who enrich our community and sharing updates on the research efforts shaping this year.
“Their unconditional love, wisdom, and life experiences enrich the lives of their grandchildren and offer support to their own children as they navigate parenthood.”
Chantel Jablonski
In This Issue
Celebrating Grandparents
A celebration of the grandparents who enrich our families, featuring Chantel Jablonski’s reflection on the unconditional love and support they bring to children with Lowe syndrome.
Research Update
An update on two newly funded research projects exploring alpelisib, CanFite’s plans for Piclidenoson, and an explainer on gene editing technology and its potential for Lowe syndrome.
Memorials
We honor the memories of Kang-Suk Andrew Lee and Douglas Mitchell, two cherished community members whose families share their stories of love, resilience, and joy.
Purdue Symposium Preview
Get a preview of the International Lowe Syndrome Symposium taking place at Purdue University in October 2024, bringing together researchers, clinicians, patients, and families from around the world.
Open doors for families with Lowe syndrome: sponsor Walk & Roll 2026 Last year, 15 families raised more than $68,000 in our first Walk & Roll campaign. This year, we’re aiming higher, and we’re inviting businesses to walk, roll, and open doors with us as sponsors of the 2nd Annual Walk & Roll for Lowe... Read More
Every step we take together brings us closer to a brighter future. As we prepare for this year’s Walk & Roll campaign, we are calling on our incredible community of families, friends, and supporters to join us in making this our biggest year yet! Whether you walk around your neighborhood, gather friends at a local... Read More
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