Circle of Care. Vision for a Cure.

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your full resource
for meaningful
information and,
most importantly,
help.

 
Happy Boy with LS, Mom and son with LS holding hands
WHEN

June 24-26, 2022

WHERE

Dallas, Fort Worth, TX

MORE INFO

The Lowe Syndrome Association Unites

232

Families

26

Countries

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FOR PARENTS:

Please complete the
Patient Registry below.

LSA IN PARTNERSHIP WITH

Coordination of Rare Disease Patient Registry

If you or a loved one has been diagnosed with Lowe syndrome, you can make an important contribution to future research! Although the registry is currently available only in English, you may receive help from a trusted physician or family member to enter your information in English.

Questions?

For New Patients

Enroll

For Current Registrants

Update Your Info

For Researchers with IRB Approval

Researchers

Watch a Video About CoRDS

Watch
FEATURED FAMILY

The Sullivan family hosts a truck show to raise awareness

Thomas and Wendy Sullivan from Alabama host “Lowe Syndrome and Chrome”, a truck show to benefit the LSA.  More than 40 Big Trucks and drivers gathered together to spread awareness and raise funds for Lowe syndrome. The Sullivans’, parents of Waylon who has Lowe syndrome wanted to raise awareness and help the community. All funds have been donated to the LSA’s Leland McSpadden Research Fund. Thank you to the Sullivan Family and all their supporters. View the article here!

Sullivan Truck with Lowe syndrome awareness graphics and names of boys with Lowe syndrome

Other Ways
You Can Support Us.

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Make LSA Your Designated Charity for Birthdays & Special Occasions

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Shop Online at Places That Support LSA

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Check Out More Fundraising Ideas

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