If you or a loved one has been diagnosed with Lowe syndrome, you can make an important contribution to future research! Although the registry is currently available only in English, you may receive help from a trusted physician or family member to enter your information in English.
Please contact CoRDS:
Thomas and Wendy Sullivan from Alabama host “Lowe Syndrome and Chrome”, a truck show to benefit the LSA. More than 40 Big Trucks and drivers gathered together to spread awareness and raise funds for Lowe syndrome. The Sullivans’, parents of Waylon who has Lowe syndrome wanted to raise awareness and help the community. All funds have been donated to the LSA’s Leland McSpadden Research Fund. Thank you to the Sullivan Family and all their supporters. View the article here!