Children diagnosed with Lowe Syndrome often see specialists in Nephrology, Endocrinology, Ophthalmology and Neurology. A general pediatric physician can help to manage these specialists. Frequent blood tests to manage kidney function is usually required
The Lowe Syndrome Association (LSA), an international non-profit organization made up of parents, friends, relatives, and professionals. The LSA provides information, fosters communication among families, and supports research. It publishes a newsletter as well as this website, and sponsors conferences.