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  • Lowe Syndrome
    • What is LS?
    • Helpful Resources
    • Digital Newsletter
  • New Diagnosis
    • Overview
    • Carrier Detection
    • Well Care
  • Research
    • Current Research
    • Request for Proposals
    • Patient Registry
    • Citizen Health
  • About
    • About Us
    • Our Community in Pictures
    • Board of Directors
    • Medical & Scientific Advisory Board
  • Conferences
    • 2025 Conference
    • Past Conferences
  • Get Involved
  • Contact
  • Free Membership
  • Donate
    • Donate Today
    • Planned Giving

Join for Free

Membership with the Lowe Syndrome Association is free. Members get connected by receiving e-newsletters and occasional emails with updated information about research , the patient community, patient and family meetings and online opportunities, and more.  The LSA does not share member contact information in any form and members can “unsubscribe” to our communications at any time.

Ready to make a difference?  LSA began with 15 families in 1983 and has grown exponentially ever since. Made up of colleagues, relatives, friends, professionals, our broad community database is key to our success.‎ So, what are you waiting for?Team up with us.  And help us, help so many.

Our community generosity has allowed us to offer so many benefits to those affected by Lowe syndrome – individuals, parents, caregivers, medical and educational professionals alike.

  • Never miss our digital newsletter, On The Beam, chock full of information and inspiration
  • Digital communications; emails, webinars, medical and research updates
  • Access to our social media and private parent/caregiver pages
  • Invitation to participate in all LSA activities- including zoom sessions and International LSA Conferences
  • LS Patient Registry

 

While there are no fees to join our community-  we welcome and rely on donations to maintain and accelerate progress.  Click here to donate to the LSA!

Please note: If you already receive LSA email communications and would like to update your email address, please contact the LSA at lsa-admin@lowesyndrome.org

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  • Additional Contacts

  • For LS Parents

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    Membership Level

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    Complimentary

    $0 PER YEAR
    • I am a parent/caregiver or individual with 
 LS unable to make a contribution at this 
 time
    • Digital emails, newsletters, & notifications
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    Adult With LS

    $10 PER YEAR
    • For adults NOT living in their parents home
    • Digital emails, newsletters, & notifications
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    Standard Membership

    $35 PER YEAR
    • Digital emails, newsletters, & notifications
    • New member welcome Kit
    • Printed newsletter (mailed)
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    Deluxe Membership

    $100 PER YEAR
    • Digital emails, newsletters, & notifications
    • New member welcome Kit
    • Printed newsletter (mailed)
    • 10% discount on LSA conference fees (for immediate family members only)
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    Friend Of The LSA

    $500 PER YEAR
    • Digital emails, newsletters, & notifications
    • New member welcome Kit
    • Printed newsletter (mailed)
    • 10% discount on LSA conference fees (for immediate family members only)
    • 10% discount on merchandise sold at the LSA conference, if attended.
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  • Note: donations are not required to join the LSA.
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Or Donate By Mail:
Lowe Syndrome Association
8190 Beechmont Avenue, Suite 111
Cincinnati, Ohio 45255

Lowe Syndrome Association Logo
8190 Beechmont Avenue, Suite 111,
Cincinnati, Ohio 45255
|216-630-7723
|info@lowesyndrome.org

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Other LS Organizations
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  • French LSA
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