Membership with the Lowe Syndrome Association is free. Members get connected by receiving e-newsletters and occasional emails with updated information about research , the patient community, patient and family meetings and online opportunities, and more. The LSA does not share member contact information in any form and members can “unsubscribe” to our communications at any time.
Ready to make a difference? LSA began with 15 families in 1983 and has grown exponentially ever since. Made up of colleagues, relatives, friends, professionals, our broad community database is key to our success. So, what are you waiting for?Team up with us. And help us, help so many.
Our community generosity has allowed us to offer so many benefits to those affected by Lowe syndrome – individuals, parents, caregivers, medical and educational professionals alike.
- Never miss our digital newsletter, On The Beam, chock full of information and inspiration
- Digital communications; emails, webinars, medical and research updates
- Access to our social media and private parent/caregiver pages
- Invitation to participate in all LSA activities- including zoom sessions and International LSA Conferences
- LS Patient Registry
While there are no fees to join our community- we welcome and rely on donations to maintain and accelerate progress. Click here to donate to the LSA!
Please note: If you already receive LSA email communications and would like to update your email address, please contact the LSA at lsa-admin@lowesyndrome.org