Every two years, our community comes together at the LSA Biennial Conference — families, friends, and medical professionals learning side by side and building the relationships that carry us through the years in between.
These conferences are a rare opportunity for learning directly from experts in the field. Just as importantly, they give parents the chance to talk with and get to know other LS families — building a community that lasts well beyond the conference itself.
Save the Date for Long Beach in 2027!
Mark your calendars: the Lowe Syndrome Association’s 2027 Conference is coming to Long Beach, CA, June 25–27, 2027. This will be our first return to California since 2019 and our fourth time bringing the LSA family together in the Golden State.
Ready to book? Room rates at the Marriott Long Beach Downtown are $239/night, approximately $278 with taxes. Reserve your hotel room here.
Registration opens soon — share your contact info and we’ll make sure you’re first in line.
Looking for information about our stipend program? Please find additional details here.
2025 Conference Recap
Cincinnati, Ohio | June 27–29, 2025
The 18th International LSA Conference brought families from across the U.S. and around the world together to Ignite Action. Check out photos from the weekend, watch the session recordings, and help us celebrate a community that keeps growing.

































































































