Helpful External Organizations
External Resources
Living with Lowe syndrome: A Guide for Families, Friends, and Professionals
Published in 2010 and based on a comprehensive survey in which 137 Lowe syndrome families participated, this book which provides medical and developmental information about Lowe syndrome. Includes genetics, research, effect on the family, and photographs. This fourth edition has been expanded to 116 pages (more than double the previous 1987 edition). Many families have relied on this book as an ‘operating manual’ for individuals with Lowe syndrome.
Free Download
D-Termined Program - Part 1
Learn more about the D-Termined Program (DTP), a program that helps dentists accommodate patients with specific needs, including boys and men with LS.
D-Termined Program - Part 2
In Part 2, the D-Termined Program (DTP) provides clarification and updated techniques based on 10 years of clinical use.