2027 Lowe Syndrome Association Conference

Mark your calendars for the Lowe Syndrome Association’s 2027 Conference, coming to Long Beach, CA, from June 25–27, 2027.

This will be our first return to California since 2019 and our fourth time bringing the LSA family together in the Golden State.

California, Here We Come

With more than 20 LSA families based in California and several others in the surrounding states, we’re excited to make this conference easier to reach for families on the West Coast.

We Heard You

When selecting next year’s conference location, one of our top priorities was the feedback from our families. After considering many properties in California and Arizona, we selected the Long Beach Marriott Downtown for having the most ADA-accessible rooms of any property we reviewed. In addition, every guest room has a mini-fridge, and microwaves are accessible throughout the hotel. The hotel also has a pool, which we know is important to many families to cool off or blow off steam. The hotel was recently renovated and sits a couple of blocks from the water.

Several Airport Options

Long Beach sits within reach of three major airports, giving our families flexibility when it comes to booking flights:

Long Beach Airport (LGB)
Just a few miles from the hotel, with direct service from many cities across the country.

Los Angeles International Airport (LAX)
One of the largest hubs in the world, with extensive domestic and international connections.

John Wayne Airport / Orange County (SNA)
A convenient option for families arriving from the south or east.

Ready to Plan Your Trip?

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Long Beach: There Is So Much Waiting for You

For many families, the LSA conference is one of the only trips they’ll take all year—and we want it to count. We have also heard from families who want to participate in another conference after many years to reunite with old friends. They are seeking a true vacation-type experience.

In addition to the beach and other coastal highlights, Disneyland is 20 minutes away. The Queen Mary, the Aquarium of the Pacific, Shoreline Village, and the restaurants and shops of downtown Long Beach are all within easy reach. While much of the country is typically deep into summer heat in late June, Long Beach stays mild—lows in the 60s, highs around 77°F, with a coastal breeze off the Pacific.

Room Rates & Conference Registration

Room rates at the Marriott Long Beach Downtown are $239/night, approximately $278 with taxes.

It’s also worth sharing: your registration fee covers only a fraction of what it actually costs to produce this conference. The LSA underwrites a substantial portion of the expenses – from meeting space and meals to programming and childcare – so that families can attend at a price that would otherwise be out of reach.

Conference registration will officially open soon. Pricing will be $200 per adult, $100 per child (ages 10–16), and free for children under 10. As always, your child with Lowe syndrome attends free of charge. Prices increase after 12/31/26, so we encourage you to register early.

Why the Long Beach Marriott Downtown?

Finding the right West Coast venue for our LSA families was no small task – we needed a property that could accommodate our group size, provide adequate meeting space and childcare rooms, and meet the ADA requirements our families depend on. We understand these challenges firsthand because as a volunteer board made up almost entirely of parents of boys with Lowe syndrome, we are LS families too.

We know our boys’ needs are extraordinarily diverse and no single hotel can be everything to everyone. What we can promise is that we approach every decision with our families in mind—and that we’ve negotiated hard to keep rates as accessible as possible.

Stipend Program Returns

At the 2025 conference, the LSA supported 11 families through registration fee waivers and hotel assistance. Our stipend program prioritizes first-time attendees because we know how critical that first conference is – from access to Lowe syndrome experts to connecting with other families.

New this year, families requesting LSA stipend support to attend the 2027 Conference must fundraise for the 2026 Walk & Roll campaign to be eligible for a stipend — creating a Give Lively fundraising page for their son and sharing it with their community. It’s our way of inviting every family into the mission. Read more about the stipend program here.

Be the First to Know

Conference registration will open soon. Share your contact info, and we’ll make sure you’re first in line for updates and announcements.

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When Friday – Sunday June 25 – June 27, 2027 Where Marriott Long Beach Downtown
111 E Ocean Blvd
Long Beach, CA Learn More