The Lowe Syndrome Association has grown into a global community of families, friends, and professionals connected by Lowe syndrome. Here are the ways to be part of it.

Join Our Community

Membership is free, and it’s the best first step. You’ll get our newsletter, access to our private parent and caregiver groups, research updates, and an invitation to every LSA activity.

Meet Our Families

Read stories from families across our community.

Attend an Event

Gather with us at our international conference, participate in our annual Walk n Roll, or join our monthly caregiver Zoom calls.

Shop

Show your support and help raise awareness with LSA gear from our online store.

Follow Us on Social Media

Stay connected with the LSA on social media between events and newsletters.

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Facebook

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Instagram

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LinkedIn

Members also get access to our private Facebook group for parents and caregivers — a space to ask questions and share day-to-day support with families who understand.