Living With Lowe Syndrome Book

THE 4TH EDITION OF THE LIVING WITH LOWE SYNDROME BOOK IS AVAILABLE!

Twenty three years after the Living with Lowe Syndrome (LWLS) booklet was first published, the Lowe Syndrome Association is proud to present a fully updated and revised fourth edition of the book. The fourth edition has grown from a 44 page booklet into a 121 page book.

The Living with Lowe Syndrome book and its entire contents are copyright © by the Lowe Syndrome Association. No part of this book may be copied or published in any form without express written consent from the Lowe Syndrome Association.

WHAT WAS UPDATED?

All of the previous sections of the Living with Lowe Syndrome booklet were substantially updated and many new exciting sections were added regarding:

  • Seizures
  • Abnormal Labs
  • Bones and Joint
  • Dental Information
  • Discussion of Puberty
  • Parent Resource section
  • Behavior and Behavior Management
  • Suggestions on positive reinforcement techniques
  • Development Milestones section that outlines the ages at which individuals with Lowe syndrome first achieved language, cognitive and motor skill abilities

U.S. DOMESTIC ORDERS

For orders to a U.S. address. Please choose whether you are a member of the Lowe Syndrome Association by clicking one of the buttons below. Note that membership is subject to verification prior to order fulfillment.

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INTERNATIONAL ORDERS

For orders shipped to an international address. All prices are in U.S. Dollars (USD). There is an additional $10.00 USD charge per book to help cover the additional cost of shipping internationally. Please choose whether you are a member of the Lowe Syndrome Association by clicking one of the buttons below. Please note that membership is subject to verification before order fulfillment.

+ $15 Shipping per book

MAIL-IN ORDER FORM

Instead of ordering online , you can print out an order form and mail it to the Lowe Syndrome Association. Please print out the order form and mail it your payment information to the LSA at the following address:

Lowe Syndrome Association
PO Box 864346
Plano, Texas 75086-4346
DOWNLOAD ORDER FORM