About The Lowe Syndrome Association

In 1983 a handful of parents founded the Lowe Syndrome Association (LSA). The LSA is an international, voluntary, non-profit organization made up of parents, friends, professionals, and others who are interested in Lowe syndrome, a rare genetic condition that almost always affects only boys.

New LSA Video

October 27, 2015 | By Jeff Smith
During the 2015 Lowe syndrome conference in Washington DC, a number of parents were asked what it means to be a member of the Lowe Syndrome Association.  The following video captures those interviews and touches on the spirit of the LSA fa... Read more »

JOIN THE LSA

Our mission is to help families connect with each other. Since 1983 we've grown from 15 families to over 225 families in 37 states and 26 countries. In addition to families, the LSA has over 261 members who are relatives, friends and professionals. This video was created by a parent and describes why parents choose to become members of the LSA.

MORE ABOUT MEMBERSHIP

FUNDRAISE FOR THE LSA

Over the years, the LSA has benefited greatly from the enthusiasm and dedication of many members who have organized fund-raising events and found other creative ways to help raise money. Without their help, we would not have been able to achieve many of our accomplishments, especially in the area of medical research.

MORE ABOUT FUNDRAISING

DONATE NOW!