About The Lowe Syndrome Association

In 1983 a handful of parents founded the Lowe Syndrome Association (LSA). The LSA is an international, voluntary, non-profit organization made up of parents, friends, professionals, and others who are interested in Lowe syndrome, a rare genetic condition that almost always affects only boys.

A Star Spangled Spectacular Conference

November 18, 2014 | By Theresa Haugen
The 14th International Conference on Lowe Syndrome - A Star Spangled Spectacular – happens the last weekend in June 2015, from Friday the 26th through Sunday the 28th, in Washington, DC at the Renaissance Hotel Dupon... Read more »

14TH INTERNATIONAL CONFERENCE ON LOWE SYNDROME

The conference is scheduled for June 26-28, 2015 in Washington DC. The event will be held at the Renaissance Washington, DC Dupont Circle Hotel. For more information on the hotel, amenities, location, etc, you can visit the hotel's website. To make a hotel reservation for the 2015 conference, you can use this specia... Read more »

JOIN THE LSA

Our mission is to help families connect with each other. Since 1983 we've grown from 15 families to over 225 families in 37 states and 26 countries. In addition to families, the LSA has over 261 members who are relatives, friends and professionals.

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FUNDRAISE FOR THE LSA

Over the years, the LSA has benefited greatly from the enthusiasm and dedication of many members who have organized fund-raising events and found other creative ways to help raise money. Without their help, we would not have been able to achieve many of our accomplishments, especially in the area of medical research.

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