In 1983 a handful of parents founded the Lowe Syndrome Association (LSA). The LSA is an international, voluntary, non-profit organization made up of parents, friends, professionals, and others who are interested in Lowe syndrome, a rare genetic condition that almost always affects only boys.
While discussing yet another medical problem tied to my son’s Lowe syndrome (LS) at the pediatrician’s office, I proclaimed my son had to be the most unlucky child. The pediatrician said “You may be unlucky, your son is just plugging along”. He was right, my son only knew life with LS and the resilience of […]
Our mission is to help families connect with each other. Since 1983 we've grown from 15 families to over 225 families in 37 states and 26 countries. In addition to families, the LSA has over 261 members who are relatives, friends and professionals. This video was created by a parent and describes why parents choose to become members of the LSA.MORE ABOUT MEMBERSHIP
Over the years, the LSA has benefited greatly from the enthusiasm and dedication of many members who have organized fund-raising events and found other creative ways to help raise money. Without their help, we would not have been able to achieve many of our accomplishments, especially in the area of medical research.MORE ABOUT FUNDRAISING