JAMES JERMAN LSA FUNDRAISER
NYC/November 4, 2016
Donations can be accepted online click LSA's donation page.
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THERE ARE MANY WAYS YOU CAN HELP
GENERAL
DONATIONSHELP US WITH GENERAL OPERATING EXPENSES WHERE OUR OTHER FUNDS FALL SHORT
RESEARCH
FUNDFUND FOR MEDICAL AND SCIENTIFIC RESEARCH THROUGH OUR LELAND MCSPADDEN MEMORIAL FUND
CONFERENCE
FUNDHELP FUND THE LSA CONFERENCE WE HOLD EVERY TWO YEARS FOR FAMILY, FRIENDS,PHYSICIANS, AND OTHER PROFESSIONALS
MEMORIAL
DONATIONSMAKE A DONATION IN MEMORY OF A LOVED ONE OR FAMILY FRIEND
DONATE NOW!
HONORARY
DONATIONSMAKE A DONATION IN HONOR OF A LOVED ONE, FAMILY MEMBER OR FRIEND TO HELP THEM CELEBRATE A BIRTHDAY, HOLIDAY, ETC...
About The Lowe Syndrome Association
In 1983 a handful of parents founded the Lowe Syndrome Association (LSA). The LSA is an international, voluntary, non-profit organization made up of parents, friends, professionals, and others who are interested in Lowe syndrome, a rare genetic condition that almost always affects only boys.
LoweLight: My Superpower
While discussing yet another medical problem tied to my son’s Lowe syndrome (LS) at the pediatrician’s office, I proclaimed my son had to be the most unlucky child. The pediatrician said “You may be unlucky, your son is just plugging along”. He was right, my son only knew life with LS and the resilience of […]
15TH INTERNATIONAL CONFERENCE ON LOWE SYNDROME
Please join us June 30-July 2, 2017 in Chicago, Illinois. The 2017 conference will be held at the Chicago Marriott O'Hare, which is located only a few minutes from the Chicago O'Hare airport.
For more information on the hotel, amenities, location, etc. please visit the following Marriott website a... Read more »
JOIN THE LSA
Our mission is to help families connect with each other. Since 1983 we've grown from 15 families to over 225 families in 37 states and 26 countries. In addition to families, the LSA has over 261 members who are relatives, friends and professionals. This video was created by a parent and describes why parents choose to become members of the LSA.
MORE ABOUT MEMBERSHIPFUNDRAISE FOR THE LSA
Over the years, the LSA has benefited greatly from the enthusiasm and dedication of many members who have organized fund-raising events and found other creative ways to help raise money. Without their help, we would not have been able to achieve many of our accomplishments, especially in the area of medical research.
MORE ABOUT FUNDRAISING